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The story behind Kind Beads

I started making my jewelry out of pure joy and fulfillment . It has now turned into a labor of love for my son Cole. My 15 year old son was diagnosed at 13 with a Cronic back disorder “kyphosis”. It’s like scoliosis but worse. His condition makes his spine grow forward (hunchback). Without the surgery, he would have been paralyzed or dead by age 40. It puts pressure on his heart and lungs and would have suffocated without surgery.

August 30th of last year, he had 2 stainless rods put in with 8 screws and huge amounts of wire. He came thru surgery with his curvature starting at 100 degrees, woke up from surgery at 64 degrees. It was miracle to us! He woke up almost 4 inches taller. Looking down at me and Gray! Wow! My baby boy woke up a grown man!

We were released 4 days later and after a week and a half, his wound from neck to waist was still open:( we went back to Shriners and stayed another week with a wound vac on his back. It was finally starting to close! We came home and he started running fever and the wound oozed and took about 3 months to eventually close. He finally started the 8th grade with alot of pain and had to bring a pillow to school to sit against for about 6 months. On our 3 month checkup the doctor told us the bottom screws had come out. He was losing height and starting to slope over again:( he developed an abcess on his tailbone right after that. Thanks to a very special nurse friend of ours, he came out to our house every day for a week to lance and pack his wound. My poor baby would scream in pain while this was being done. We went back to the doctor about a month later because the abscess had moved up to the base of his scar and would ooze and drain constantly. I had never seen anything so horrible looking in my life! I showed pictures to local doctors and they had never seen anything like it. We took him back to Shriners and our doctor informed us it was a rare form of seratia mencacous. A very bad infection that would only go away when the hardware came out….could we get any worse news?! It seems that anything that could go wrong has. Now he has surgery scheduled for July 25th to take everything out with hopes that his back has fused. Today he made me feel a little higher on his back where the 2nd to bottom screws that came out and are just floating in his back and those have worked their way out to it seems… He cant sit up because the screws are painful pressing against his spine and skin.

I have never been thru anything so horrible watching your child deteriorate at 15. This should be the best time in his life. Hanging with friends, learning how to drive and starting to go out with girls. (that’s hard for me to say but true). He now has sloped down to 80 degrees losing about 3 more inches in height. he should have been a tall man!

We have 3 weeks now until surgery. I have gotten such a wonderful KIND response from my friends and total strangers! It just seems to me, all this came to me at the right time. Traveling back and forth for doctor visits, missing work, paying for bandages and medications for him has really taken a toll on our finances caring for him. Making and selling my jewelry is my way to supplement income to take care of expenses. Please pray for our family and my beautiful son Cole. He has a wonderful outward disposition and is the constant comedian! He is so special and I know there is a reason all this has happened to him. We will find out one day, but right now, it’s very hard to accept that. Thank you for all the positive response I have gotten on my jewelry! He and it are my passion, and my labor of love! Thank you for supporting us and praying for my family while we get through this hurdle in life! God willing he will come out of this healed and healthy!! I am working on a website for my jewelry and I will accept paypal as payment. Please check it out and thanks liking Kind Beads!